Thursday, 28 February 2013

BEATITUDES OF THE DISABLED

Blessed are they who don’t shun me
Just because I have a disability
Blessed are they whose concern for me
Goes beyond pity and charity

Blessed are they who make me feel
That I should be given an equal deal
Blessed are they who think I should be
Given a chance to develop the skills in me

Blessed are they who encourage me
To overcome the embarrassment of disability
Blessed are they who don’t hide me away
Just because I am different from they

Blessed are they who because I am blind
Don’t also think I have no mind
Blessed are they who do not balk
When I dribble all over or struggle to talk

Blessed are they who are patient and kind
Knowing it takes time to work things in my mind
Blessed are they who looked away
When I was clumsy at mealtime today

Blessed are they who put themselves out
To include me too in what they’re about
Blessed are they who give me way (in a queue)
Knowing I can’t stand as long as they

Blessed are they with a cheery smile
Who stopped to chat for a little while
Blessed are they who see in me
A person of WORTH & ABILITY!
(adapted from Beatitudes of the Aged - Jacqueline Colaco)

‘THAT’S WHAT FRIENDS ARE FOR’

Sunday, 17 February 2013

I LEFT BEHIND MY HEART AT HOME...

          “Life takes its course, and one must move on ‘in sync’ with it!”  But this is easier said than done, and so I grieved as I recently left my home of four decades.  Permit me to assuage the pain, with a trip down a happy ` memory lane’ known as 4, Ahmed Sait Road, Fraser Town.

            It was in June 1958, after Dad retired, that we moved lock, stock and barrel from Bombay to our new home in Bangalore, My parents and six of us seven children (still to be settled or educated), started on a new chapter of our lives.  My eldest sister who had married a few months earlier, continued to live in Bombay where her husband worked.  The house in Bangalore was selected for us by one of my future brothers in law. He already had his eye on one of my sisters, and wanted her to live in the same area as he did!
  Our home was called `Deer Lodge’ because of two stone deer that graced its portals. Soon however, the rather unappealing deer (and the house name) were dispensed with, to allow for extension of the house for it’s numerous occupants. I the youngest, at eight years of age, shared my parents’ bedroom in one wing, my three sisters occupied the other, and my two brothers took over the back cottage, which they named ‘The Pavilion’
(My brother Joe is a great cricket enthusiast!) Like typical Bangalore houses, this one too had a large airy verandah, which led to the central wing consisting of a drawing cum dining room and kitchen with attached storeroom. High tiled ceilings kept the need for fans at bay, for many a decade. The garden had its fair share of fruit trees – banana, papaya, guava, star gooseberry and mulberry; also enough space for everyone to indulge their gardening fantasies of colourful flower beds, which soon became a reality. Next, we hired a maid named Rosemary Ammal , who served us for a long, long time, producing mouth watering delicacies.  A dog called Fido and a rooster and some cackling hens were added, thus making the household complete, in true Bangalore style!
           
My sisters settled into the teaching profession, while my brothers and I continued our studies.     Fun, laughter and music flowed through our home as did streams of relatives and friends. The first decade was one of many joyous occasions – the first grandchild was born and many followed. My other sisters all got married. These were real fun times - preparing for and enjoying the special milestones in our family. My brothers and I used to have great fun at the expense of their suitors, and often would pile on to the romantic expeditions, like picnics and boating in Ulsoor Lake, because the poor chaps would find it impolite not to invite us out too! When my first sister got married I was `flower girl’ at her wedding. By the time my fourth sister did, I graduated to being `bridesmaid’ – a sort of ‘coming-out’ for me at seventeen, dressed in a saree for the first time and trying to behave `grown up’! I was now the sole occupant of the other wing of the house and continued to remain so till the day I left, as I chose to stay single and live in the parental home.  Soon after, my brothers moved out too, to work and live elsewhere. But they would often pop in by surprise, while my sisters and their families continued to visit for confinements or holidays through the seventies.  Grandchildren began to grow up and enjoy the warm simplicity of their grandparents’ home in Bangalore.  Plain bread and butter and coconut muffins from the local bakery at tea-time satisfied their hungry little stomachs, and till today, widely travelled as they all are, they still want to eat the same fare, as do  ‘their’ little ones.  “The food in this house has it’s own special touch”, they say.  Simple pleasures like cycling on the road , or rides on our scooters, boating in Ulsoor Lake and picnics to Cubbon Park and the family farm on Mysore Road thrilled them as they did us, in earlier years.
My parents disciplined us in a nice manner. “Why can’t your parties be from 4p.m.to 10 p.m.” said Dad.  However, if we were home by midnight, he would not protest too much.  If it was later, you could be sure he would be standing right behind the front door looking out anxiously for us to return.  It irritated us then but now I understand the wisdom of his concern and also wish that parties that I have to attend now could end at 10:00 pm!  When grandchildren reached their teens, it seemed to us that they were given a few more liberties.  Thus life went on for us through many happy decades during which a highpoint was my parents golden wedding anniversary.  The family converged for the occasion and we had much fun sharing in the celebrations which were repeated in the same church and my maternal grandparents house, where they had taken place fifty years earlier, in 1933.  My brother Peter documented their lives and times on slides prepared from old photographs, and we had a whale of a time viewing those fifty golden years and earlier, during our family gatherings.
We were a blessed family, with sad times too few to remember.  Our parents passed on -each at the age of 86, having lived their lives to the full, and having inculcated in us the values and principles they lived by.  It was a difficult time when the seven of us had to decide to part with our ancestral home.  But the bonds of unity that our parents had forged among us, took us through this process smoothly.  Although I left with much sadness in my heart, I now look back at all the happy times, which I hope will sustain me through the years to come -wherever I am and whatever I do!

 added ten years after…… Although I left ‘HOME’ in 1999 with much sadness in my heart, it gives me a warm feeling now to look back on those happy times. New memories of this decade are being created as the family grows and milestones continue to be celebrated. Like my eldest sister’s golden wedding anniversary earlier last year. These ‘happenings’ will certainly sustain me through the years to come – wherever I am and whatever I do!  Moreover, Fraser Town has regretfully changed its face so much in this past decade,my grief at moving away is assuaged now. 


Monday, 11 February 2013

THE JOY OF GIFTING A PLANT

      Try it…
      Satisfaction guaranteed to both giver and receiver! I started this initiative at Christmas 2008 and repeated it at my 60th birthday party in 2009. On this auspicious day as my guest left the venue, I gifted a variety of over a hundred potted plants, each one attractively wrapped with cellophane paper and tied with a ribbon. While the celebration was on, the plants formed an attractive backdrop on the stage behind, and had my guests presuming they were part of the decorations. Only as they bid me goodbye, much to their surprise and emotion, did they realize that I was presenting each family a potted plant, accompanied with a word of thanks. After all, these relatives and friends had been the rainbows in my life over my sixty years, and had blended as one through their inspiration, support and outreach in helping me cope with over two decades of painful and degenerative Rheumatoid Arthritis.
      Gifting plants is now a regular feature with me, be it on special occasions, or when someone drops by on me after a long time, or when I call on someone. Many have told me this is a super idea, as it eliminates breaking one’s head over what to give to those who seemingly already have everything. Honestly, gifting a plant is something anyone can do with very little effort. Costs starting from as low as Rs.10 are variable to suit individual budgets, the choice is wide and the product is long lasting. It need not take up space in a home and one does not need the proverbial ‘green fingers’ to tend most plants. Also, plants do not die as easily as the more cynical may conjecture. A bit of sunlight or shade as recommended and a little TLC (read admiration) is all that’s called for. Perhaps a re-potting is necessary once in a year or two. Believe me, the reward is so satisfying! I myself get to enjoy the beauty of these plants until I give them away.  Placed in my garden, they add colour and beauty to my own collection of over a hundred pots. When these are gifted, I acquire a new lot. And even with those I part with, the thrill for me continues each time a receiver excitedly conveys that my plant is thriving in their home!
      I buy these plants at one of the horticulture training facilities/nurseries run by The Association of People with Disability at Lingarapuram, Jeevan Bhima Nagar and Kyalasanahalli, (Doddagubbi, off Hennur Road) at Bangalore. www.apd-india.org.
As these plants are produced and nurtured by APD’s gardeners with disability and similarly by their trainees, I thus enable a worthy cause and simultaneously fulfill my bit for the environment. APD’s studies have proved the therapeutic value of plants, and many of the garden herbs they grow have medicinal and cooking uses. Again, a double purpose served! Then of course, among the hundreds of other plants to choose from, there is the visual beauty of new shoots emerging, buds appearing and blooming. And once the pot is gift wrapped, the presentation moment cannot be described as less than joyous for both giver and receiver!
GIFT A PLANT AND YOU MAY BE SOWING THE SEEDS OF A FUTURE GARDEN!

MOSQUE ROAD – MODEL OR MUDDLE?!









     Swanky? Spoiled?  What I wonder, would be your view of present day Mosque Road, located near Bangalore East Station?  Depends I guess, on whether you are a newcomer who appreciates it for its present residential cum utilitarian value,  or an old timer Bangalorean like me who misses it for its easy laid back pace of 1958. I was just eight then, when Fraser Town (now Pulikeshnagara) became my new home after Bombay. For forty one years thereafter, I lived at Ahmed Sait Road which adjoins Mosque Road where it dips between inclines up towards Coles Road at one end, and the Hajee Ismail Sait Masjid at the other. During those decades, Mosque Road was very minutely the hub of the area’s commercial activities as well. This majestic shade providing tree lined avenue, similar to others in various other parts of our city, is still lined with rainflower or ‘gum’ trees (Samanea Saman), that shed what we  termed ‘gum coys’, during the monsoon. These would get crushed under the wheels of passing vehicles and be embedded into the road, or ‘God forbid’ into our footwear soles if we unknowingly stepped on them!  We’d also get our kicks from de-seeding their pods and rubbing the beans against our clothes till they developed an intolerable degree of heat, just so we could press these on unsuspecting friends faces, to evoke their shrieks!  On view are also plenty of Spathodea Campanulata trees named ‘piss coy’ in local slang, being very descriptive of its fruit that squirts a liquid when squeezed.
     The Mosque, which gives the road its name, was a humble structure in my time. We were attuned to the muezzin’s call at dawn and dusk each day, as we were to the ITC factory sirens across the railway tracks.  The mosque stands at the corner adjoining Madhavaraya Mudaliar (MM) Road, and just beyond it is the railway overbridge connecting with Pottery/Clarke Roads. These led to the then outer limit of Bangalore (1950s/60s) – Richards Town and da Costa Square, with Lingarajapuram its ultimate periphery! Beyond was Silver Lake, a popular picnic spot and one for a romantic rendezvous! After that it was on to the back of the beyond for us - Hennur Road and its parallel Banaswadi Road with vineyards, mango groves, granite quarries, cashuarina groves etc. etc.  And quite a few water bodies to boast of too. No garbage or effluent dumps like today, as is the Mosque road drain. These were the wilds or the countryside of our adventurous youthful hiking and biking trips.
      The beginning of Mosque Road, linking it to Coles Road, connecting to the older Bangalore, was actually at A.M. Bakery and CafĂ©, which was much patronised by us during schooldays. Japanese cakes and Cream horns were its speciality. Most schools were located on Promenade Road, not far away.  Shops for daily provisions were A.M. Stores and Circle Stores. ‘Drain Vadais’ were famous, especially on rainy and wintry evenings, and were sold by a woman sitting (under her umbrella) in the drain alongside Circle Stores, located opposite the Mosque. Cycling was our mode of transport during school and college days, with few cars, hardly any buses, no autos and mostly cycle rickshaws to contend with. My mum used to move around in one, with faithful Muniswamy (dressed in shirt and lungi hitched up over striped cotton drawers) pedalling her to St. Francis Xavier Cathedral or Holy Ghost Church, or to Russell Market and Richards Square in Shivajinagar, the latter two for procuring monthly provisions and other home needs.  Albert Bakery delivered bread and biscuits to homes at tea time daily, hot and fresh out of a trunk carried on a bicycle. 
     Baking of our Christmas cakes each year was done in the large ovens at the home of the same baker, who lived on the parallel Robertson road. We’d carry across the trays filled with the raw ingredients which had been blended in our own home with a generous dose of the festive spirits!

      Our earliest friends were a mix and match of caste and creed and remain so till today. The Mistrys lived at the Mosque Road junction of our road, the Pintos and Dattatreyans on Mosque road, and our immediate neighbours were the elderly Smith couple and Mrs. Stephens.  My particular friends were the youngsters Naseema  Begum and Inayathullah Khan, Tony and Clive Stephens. Later, Rupert and Rayonette Stephens were always the first to visit on special occasions and to lend a helping hand as my parents grew older. The Bethesda Assembly, Seventh Day Adventist Hospital and Dr. Chander’s Clinic catered to soul and bodily health respectively. Later Mubarak Laundry, Thomson Bakery and Balaji Tailors and the UCO Bank and SBI expanded the commercial activity in the area that showed the first signs of making Mosque Road and Coles Road today resemble downtown New York…
      Designer stores, eateries and glittering mini malls have replaced the earlier humble looking family enterprises. MM road is the ‘toast of tastes’ at Ramzan Roza - to break Iftaar with water, grapes and more sumptuous delights well before dusk was a hot pursuit this year, with the roadside stalls and restaurants full of ‘foodies’ from all castes and creeds, rich and poor alike, who came from far flung areas of Bangalore to sample its offerings.  The Masjid has turned posh, flaunting grand embellishments with a glow signs proclaiming The Prophet’s preachings. I still hear the plaintive chanting at dawn and dusk, as I have all my life which keeps me in touch with the familiar.  A call for blessings and peace among mankind that I hope will never cease, and carry more practical meaning in these communally divided and torn lives we live. Many of the gracious homes on Mosque Road are gone, including my parental one.  Many good neighbours and friends from before  are no more.  The Bethesda Assembly still stands firm in faith, as does Albert Bakery.  Its business has grown, handled by three generations, and thrives in renovated premises, with standards still maintained but prices astronomical in keeping with the times. The bakery’s renown thrives too, on rumour that a local IT bigwig purchases ‘gutlis’ here, considering them  the only ones a worthy substitute for his favourite Mumbai ‘daily bread’.
     Thus Mosque Road in 2012 sings a tune totally contrary to the one I first learned in 1958. Business is its theme song today as MONEY RULES THE ROOST! Sadly, the old Bangalore spirit of ‘laid back’ holds for nothing anymore. Pace and Space jostle side by side, as traffic flies by fast and thick, thoughtless of who gets hit, while stores attract with materialistic mantras and prices that match! So much for our Mosque Road and its adjuncts, Coles and MM Roads – truly a MODEL MUDDLE NOW!





NOT WHINER, BUT WINNER!






      In 1986, early morning stiffness and pain prompted me to take a blood test which confirmed that I had aggressive Rheumatoid arthritis, a disease I knew to be lifelong, extremely painful, degenerative and debilitating, but not terminal. The chances were that I could be bedridden or crippled, and to date no cure has been found. Aged 36 and at the peak of my career at the time, on a prestigious overseas posting with Bank of Baroda at their New York branch, my life was moving along in top gear, when its course suddenly changed. I went through a period of hopelessness. I was inclined to clutch at any straw that promised some relief, but that left me more confused and more depressed too. Towards the end of my term, I requested that I be sent back to India where the climate was warmer and I had family to give me support.
     I returned to Bangalore at Christmastime 1987, and tried indigenous treatments in a warmer climate, but over a period of time, it began to sink in that I had to live with this disease that was slowly nibbling at my mobility and ability to be self dependent. I was therefore faced with two choices. I could either cry over what I had lost or take stock of what I could still do. An excellent attitude to have for starters, but how much easier said than done! How could I smile when my body was throbbing with pain, or be nice to people who did not even try to understand what I was going through? Advice poured in on how to handle my condition and it irritated me. Patience had never been one of my virtues and now it was thrust on me because I had to be dependent on others. To put it mildly, the situation seemed bleak...
     After a while I decided to try a more positive approach and acceptance of my fate which certainly did make life easier to bear. With the support system I had in my family and colleagues, especially my bosses, I carried on working and slowly came to grips with limitations that had progressively started to set in. I drove a specially modified car till 1999, but in 1995 I quit the bank after twenty five years, knowing I could not do justice to the expectations in my position, and neither wanting to sit unnoticed in a corner office somewhere just to earn a living. So I quit fifteen years ahead of retirement, not quite knowing what the future would bring. I only knew that I wanted to start a support organization to reach out to other arthritis sufferers and a month later Arthritis Foundation (India) was born. Although arthritis has forced me to give up many of my favourite pursuits like going for walks, swimming and sports, and travelling afar, I look back on the many experiences I’ve had in these areas, and remain ever grateful for them. I have seen a fair amount of the world, and I will not say ‘die’ to travelling again.  Even if be on short trips within India. I made it to the Mumbai Marathon in 2011. What a thrill! Also to Goa on holiday. With regular physiotherapy and a balanced lifestyle I keep fairly well and active enough to be involved with people on a social basis. My recent focus has broadened to the field of disability awareness and the glaring need of the disabled in our country to have an improved quality of life. I’ve ‘run’ in the wheelchair category of the annual Bangalore marathon to make a statement that ‘where there is a will there is a way’ and to collect funds for the organization I represent – The Association of People with Disability. In 2012 I came out the highest fund raiser with Rs.10 lakhs collected in the women’s Care Champion category. In 2011 and 2012 I’ve organized and led the Global Walk for India’s Missing Girls in Bangalore in my wheelchair, against female foeticide/infanticide as part of www.petalsinthedust.com campaign. One has to only get beyond oneself and one’s miseries to find a world full of opportunities for outreach. Maybe not the exciting glittering kind you imagined as being a mark of success, but from personal experience I
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 declare that this is far beyond what the world at large deems success and one need not fade into oblivion but rather be an example and icon. Initially I used to think, “What’s the use of living like this? You cannot even manage to pick up a glass of water sometimes, or bathe, dress and groom yourself”. Fortunately, there is the other side of me which replies, “Nothing doing, you’re a fighter, you’re a brave person. You still have a lot of talent you can use, not only for yourself, but for others too!” My mother was a shining example of this. She kept herself going the best she could upto age eighty six with thirty five years of RA behind her, and twenty five of them mostly housebound. ‘Armchair ministry’ is what I classified as her special talent. She attracted visitors all the time, making them feel welcome, whatever be the inconvenience or the pain she was suffering. She was a lover of the garden, interested in music and all that went on in our lives. She touched the lives of so, so many, with her special letters, written with stiff, gnarled fingers till the very end. If she could do so much sitting in one place, how much more can I with still a fair degree of mobility and a computer at hand.
     When at times my pain is worse, I reach out to God. This is something that has come out very strong in me – a kind of total surrender to the power of God in my life as I know that there is nothing we can do without His help. And help He does! It is not that the pain suddenly vanishes or the problem goes away, but I’d find later that someone had touched my life in some way that day, which would have made my burden easier to bear. It might have been just a visitor or phone call, a card, letter or email to say hello, or maybe one conveying an appreciation of something small I had done for someone, or a compliment on an article I had written. At times of course, these do not happen and everything seems to go wrong. I do fret and fume initially, then realize it’s not solving my problem and all will pass if I remain quiet. Perhaps a much needed forced ‘cooling off’ from overdoing things and this was actually a sign of another miracle, albeit in its own way…
     All said and done, I count myself as very fortunate in the support I receive from family and friends who do not look on my disability as a hindrance to including me in their activities and outings. I still go for parties, picnics, concerts and to restaurants, because of the physical help, kindness and companionship that people extend to me. It is tough sometimes, watching them so easily do tasks that are no more possible for me to do, but it sure beats sitting around at home and moping. Of course often, they have to do the dirty work like clearing up and washing and cleaning, while I have the luxury of sitting just watching because I ‘cannot’ do! My doctors and physiotherapists, now all close friends of mine, are further sources of strength and support, encouraging me to think positively and to do as much as I can. My erstwhile employer bank continues to reach out to me as well. All in all, it’s only a positive attitude to take illness in your stride and a look around you to find so many worse off, who you can minister to, that can continue to make life meaningful and change you from ‘Whiner to Winner’!

an ordinary person who enjoys her day to the fullest with ordinary pursuits...